Wednesday, March 28, 2012

The good news keeps getting better

I finally met with Dr. Shabahang last night. He told me he saved me for last in his rounds because he wanted to end his day on a positive note. As mentioned in the previous post, the infected lymph nodes in my mediastinum turned out to be lymphoma and not esophagus cancer cells which pretty much rules out stage 4. He said it was very rare to have two distinct and unrelated cancers appear at the same time, both seeming to be in early stages. It raises the possibility that the infected lymph nodes surrounding the original esophagus tumor could also be lymphoma... a very treatable form of cancer. If that were the case, it is possible that the original tumor is only stage 2 or possibly even stage 1!

Whether stage 1, 2 or 3, it still means major surgery. He wants me to consider healing from this one and going right into the second one, saving chemo and radiation for later. This would remove all the cancer from my body if it is discovered that the cancers are both in early stages.

The surgery is called an esophagectomy and I will leave the description as a link so most of you can just not click on the link and skip the description. It sounds pretty awful. I can live a pretty normal lifestyle except for eating and sleeping. Accommodations for those activities will be required. There are two approaches:
  • A trans-hiatal esophagectomy (THE) is performed on the neck and abdomen simultaneously
  • A trans-thoracic esophagectomy (TTE) involves opening the thorax (chest).

I'm leaning towards the latter. But enough of that!


Yesterday and today they've been gradually pulling out tubes and hoses so it is a bit easier to get around. I can't tell you how enjoyable it is to stand upright, brush my teeth and walk around. Not to mention "dangling". There are still 2 tubes that will have to come out before I go home. One that delivers pain medication via an epidural and a chest tube that drains away liquids in the chest cavity. I know, TMI... but you chose to read this and I'm just passing along what I am learning as a surgery virgin.

16 comments:

Unknown said...

That's great news chuck! <3 Much love to you. You are awesome.

Unknown said...

Unknown = Emma Blair

RLW said...

OMGosh! I think I figured this blog/sign-in/comment out! I drive past your house 4x/day to & from nannying (is that a word?)M-Tu-F one week & W-Th the next. Please let me know when you're up to a visit or if you or the fam need anything.(Any time, actually - not just those days) It's a strange path you're on-ruling things out is great - you sound awesome & you've got a good team working with you!xoxoxox

Lee Ferraro said...

super, super amazing! The lymphoma explains so much of the confounding indicators. So glad to hear the good news. keep on blogging.

Rose said...

I sent my email to you today before I saw this-- the latest good news. So now I'll add a big Hurray!

Love, Rose

Andrea said...

Wonderful news. I guess the one cancer caused you
to find the other, before it got worse.
I was sure the dangling meant something else.
Hugs,
Andrea and Ed

matt said...

hey
I guess I couldn't spell the words in the picture last time I commented...was that a m and a u or an r and a n???

I just wanted to say that we are very much involved with sending that positive energy for your ordeal. Luckily the target is getting smaller and more defined. I' m grateful for your blogging. And, even if you get some vibes meant for Eschner -- it should do you good. Love from your Florida Family

Anonymous said...

So glad to hear even more good news.. Every time I see "Dr. Shabahang" in your blog posts, I read "Dr. Sha-bang!"

- Aaron P

Lee Ferraro said...

oh yeah, nice glasses

Evan Willey said...

We here at the GalliWillegany household are totally Team Chuck!

swill13 said...

Chuck -Thomas Jefferson slept upright and look how he did.

PS-Sorry about your pain mgt!
Serena

swill13 said...

Found this video which seemed helpful--definitely selling one procedure over another. Perhaps helpful? or not.

http://surgery.med.umich.edu/thoracic/clinical/what_we_do/esophagectomy_faq.shtml

Go to watch full video (on right in box)

Serena

Carolyn Stonehouse said...

Wow -- what GREAT news!!!

Janet said...

Good to hear your prognosis is improving! Hang in there and keep on danglin' :-)

Anonymous said...

Chuck
All of us in St Joe are "dangling" for you. Great to hear the latest assesment on things. We love you!!
Rick, Arleen and Rianna

Matt said...

if you leave this page, your comment is erased. You should of seen the healing prayer I was writing. I do remember that I had a bad joke about how a surgery virgin turns into a chemo-sabe ...the rest is lost.