Years ago I realized that reading and writing are activities that don't work in dreams. Your mind can't both hold a page of text while you read it and then continue to hold it so you can go back a sentence and re-read it. I used to dream I was short order cooking but whenever I looked up at the orders, I could not read the orders and I certainly could not check them for mistakes. Time moves in one direction and when you don't have the means to freeze and record time, there is a hopeless feeling of loss of control. Living in the moment is good but we still like the ability and the tools to hold on to the more meaningful moments.
I'm definitely feeling the melancholia of being infirm. I am unable to function in the way I am accustomed. Earlier I could feel daily progress towards strength but now it seems like I am feeling the same old shortcomings. Why am I so fatigued? This food pump ritual is beginning to feel like a chore. Why do I still have this non-productive cough? I find myself measuring time in 4-hour pain medication intervals. Not that the pain is substantial; it is more of a tightness that reminds me of my infirmity. And then here is the indignity of needing to have a tooth pulled. It is not causing problems now but a soon as the antibiotics wear off it will become an annoyance. I have to squeeze an extraction in there somewhere. We can't risk a tooth infection during chemo.
I do have several upcoming milestones to help me measure the time.
- Today I theoretically graduate from liquids-only to soft foods. I'm anxious to experiment but also feeling cautious. I want no more setbacks. My stomach is so small right now that I can't look at portions the way I used to. How much spaghetti is too much?
- Today I also plan to attend the media premiere of "Waterwalk" a film that I worked on from time to time over the last couple of years. It'll be my first post-op non-medical-related outing.
- Friday I meet with Dr. McCahill to answer a bunch of my burning questions about eating.
- Monday I have an "Esophagus Dialation" outpatient procedure in the hospital. General anesthesia means more IVs assuming they can still find something to poke. Since I don't actually have an esophagus, I'm wondering about all the new anatomy semantics.
- Wednesday is the "One hand clapping" procedure on my vocal cords... also general anesthesia. Maybe they should leave the IV in?
- Thursday is another CAT scan. I'll need an IV for that too.
A shower and a shave will help. So would a "flying" dream but those seem harder to come by and never when you want them.
5 comments:
What an astounding schedule you have! It sounds like you're in the business of survival. All other activities just are peripheral, aren't they? Teresa was so happy to see you recently. I think she told you I begged off due to a very serious bout with bronchitis. Nothing close to your current suffering but I, too, had a cough that wouldn't quite. It was quite productive most of the time.
I do hope the next time it will be the 2 of us. Would love to see you.
Matt says:
You put me in a position of trying to interpret your dream. Obviously the girl you tried to copy from is telling you that you need to rely on your own abilities to get through this. The math teacher is perfectly within his rights to prod you into keeping up. I do this all the time to avoid answering questions. That it seems to be your English teacher suggests that it probably is. Its not a word problem, its your blog that is the story of your illness. Word problems have answers. It is always important to have a pencil. The short order cook is there because your stomach is so small.
That's all I have except to tell you that you are very brave and I'm going to have a colonoscopy.
Matt the robot
busy week ahead for you Chuck. your endurance and optimism are an inspiration to us all; makes me reflect on some of the frivolous things I do on a daily basis.
Thank you for the terrific post. I too have similar frustration dreams, but had never realized the reading and recalling issue. So true. I have a recurring dream where I am collecting "ultra-rare" vintage Hot Wheels and Matchbox cars only to find that by the time I am ready to purchase, they have crumbled or deteriorated, or are not at all what I thought they were. Feel free to absorb as much SoCal sun and emotional support from me as you see fit.
Hey Chuck,
So glad you posted the pics of the solid food....and glad you are back on solids. Good for you! Your schedule is daunting (especially squeezing in the tooth extraction - ugh) but it sounds like they are keeping you super busy. Again, your positive outlook continues to creep through your writing and I think that is a great asset. I'm really glad the weather has been including some sunny days cuz those dreary, gray, cold days can be a drag! Take good care, buddy. Cheers! Betty
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